Our Mission

Raise awareness for pediatric rare diseases and support patients and their families so nobody ever feels alone. 

Our Values

We achieve this by fulfilling our values everyday:

  • Be a lion. Honoring Luka's spirit of bravery, beauty, strength, and resilience to help others embody the characteristics of a lion -- and always remember to roar.   
  • Raise awareness by roaring. For kids and families with rare + undiagnosed disease, the need for platelet + cord blood + bone marrow donation, newborn screen as a vital early diagnostic tool that can save lives, and effective treatment options. 
  • Support kids with rare diseases and their families through The Pride.Together, forming an eternal circle of love that connects patients, families, health care providers, and supporters. 
  • Address unique, individual needs. Focusing efforts on meaningful, therapeutic ways to address rare patient and family's unique, individual social + emotional + research needs. 

Our NON-PROFIT STORY | LUKA THE LION FOUNDATION

The Luka The Lion Foundation honors Luka Fisher, born March 4, 2014 also known as "March Forth," who fought bravely like a lion his entire life. With a rare disease that is thought to be unique to him after extensive diagnostic testing, Luka endured a lifetime of medical treatment to earn a total of 48 feel of Beads of Courage. On this necklace, each bead represents every day and procedure of his 10 hospitalizations; 11 surgeries; countless clinic visits, infusions, scans, injections, and more; two weeks of chemo, a bone marrow transplant, and treatment for several major complications. Luka did this all while teaching us to embody the characteristics of a lion of beauty, bravery, strength, and resilience -- and to always remember to roar. Despite his passing away at nearly 21 months on December 1, 2015 and #GivingTuesday, Luka continues to guide us as we give support to kids like him who brave rare disease and their care-giving families. 

As a 501(c)(3) charitable non-profit organization, established effective January 28, 2016, all donations to the Luka The Lion Foundation are tax-deductible and used directly to support kids with rare diseases and their families. We are a 100% volunteer organization and pride ourselves on giving it forward, as we were in those same shoes not too long ago. Yet, because of The Pride, we have accomplished meaningful, concrete results in a short time. With a growing list of business sponsorship opportunities, we will increase our impact to support even more kids with rare diseases and their families.