Our beautiful Luka The Lion, at around 4 months in July 2014, after he received his very first Beads of Courage, a demonstration of his bravery, strength and resilience.

Our beautiful Luka The Lion, at around 4 months in July 2014, after he received his very first Beads of Courage, a demonstration of his bravery, strength and resilience.

At nearly 21 months of life in November 2015, our brave Luka The Lion earned over 48 feet of beads for countless procedures and treatment due to a rare disease that is thought to be unique to him. 

At nearly 21 months of life in November 2015, our brave Luka The Lion earned over 48 feet of beads for countless procedures and treatment due to a rare disease that is thought to be unique to him. 

WHY WE SERVE | HOW WE ROAR

  • 1 in 10 people in the U.S. have a rare disease, that's 30 million people.
  • 80% of people who brave rare disease are kids, that's 24 million kids. 
  • Of the 7,000 known rare diseases, only 15% of these diseases have a foundation that provides support. That's an estimated 20 million kids who don't have access to a Foundation that directly supports their disease. 
  • Luka and his older brother Maks, now both angels, were two of these kids. The Fishers are that family who braved rare disease and didn't have a Foundation offering direct support. Yet, they aren't the only ones. 
  • That's why the Luka The Lion Foundation supports kids with rare diseases and their families so nobody ever feels alone -- no matter the diagnosis, or lack of diagnosis ("undiagnosed"). 
  • We address patient and family's unique needs. Without the Luka The Lion Foundation's supporters, affectionately known as The Pride, kids with rare disease and their families wouldn't have access to resources they need. 
    • Bubbly, young sisters wouldn't have interactive toys to help them get through endless biweekly clinic visits.
    • A dancer wouldn't see an off Broadway musical to inspire him to hope for a new beginning through much awaited treatment options.
    • A mom wouldn't have help with funeral costs for her beautiful and brave middle school daughter who endured years of treatment. 
    • A teenager recovering from a life saving a grueling surgery wouldn't have materials to help his fine motor skills. 
    • A toddler wouldn't have a specialized cream aimed to heal difficult to treat side effects of harsh chemo and other complications. 
    • A sibling of a patient wouldn't have a one-on-one meal with their care-giving parent at a restaurant outside of the hospital. 
    • A family wouldn't have a chance at getting back on their feet after being knocked down time and time again.